• Hydrocephalus Clinical Research Network

    The mission of the Hydrocephalus Clinical Research Network is to dramatically improve the lives of kids suffering from hydrocephalus by conducting important and field-changing, multi-center clinical research.

    Each year an estimated 10,000 people in the US and Canada will be diagnosed with hydrocephalus, a life-threatening and debilitating condition for which there is no cure.

    Many of these people are children. Left untreated, hydrocephalus can cause permanent brain damage, disability, and death. Most experts agree hydrocephalus occurs when the normal flow of cerebrospinal fluid (CSF), a natural fluid produced inside the brain, somehow gets restricted. This restriction results in increased pressure on a patient’s brain tissue.

  • The HCRN Blog

    HCRN Fall Meeting in Park City

    HCRN had their fall meeting in Park City, Utah, October 23-24. There was a lot of excitement around the recent PCORI grant and the new study, which is a randomized trial comparing shunt insertion at the front or the back of the head. This is the first randomized trial conducted in the Network and there were many details to go over, so that everyone is ready to start the study in the New Year.

    The other main focus of the meeting was on ETV-CPC. An ongoing study and the possibility of doing a randomized trial were discussed. We also focused on data quality and getting our data entered in a timely fashion, as cleanly as possible. Our meetings always generate lots of new ideas, work and excitement.  The next meeting is scheduled in Toronto in April.

    Dr. John Kestle Honored at Hydrocephalus Association Vision Dinner

    Dr. Kestle Accepts Leadership Award

    Dr. Kestle Accepts Leadership Award

    Dr. John Kestle received the Leadership Award at the 2014 Hydrocephalus Association Vision Dinner in New York City on Thursday, October 16, 2014 for his leadership in hydrocephalus research and advancing treatments. Dr. Kestle’s role in past multi-center trials and his founding of the Hydrocephalus Clinical Research Network were cited as examples of his vision and leadership in the field of hydrocephalus. Dr. Kestle is pictured here giving the audience a brief overview of some of the past and current work of HCRN including current research into Endoscopic Third Ventriculostomy with Choroid Plexus Coagulation.