Archive for September, 2011

HCRN Co-Founder Appointed to NINDS Advisory Council

By John Kestle, Tuesday, September 27th, 2011

Paul Gross, Chairman of Hydrocephalus Association’s (HA) Board of Directors, and, as you all know, a founding partner of the Hydrocephalus Clinical ResearchNetwork (HCRN), has been selected to join the National Advisory Neurological Disorders and Stroke Council, the main advisory panel to the National Institute of Neurological Disorders and Stroke (NINDS).

NINDS, a component of the National Institutes of Health (NIH), is the nation’s primary supporter of basic, translational and clinical research on the brain and nervous system. The NINDS Advisory Council is composed of physicians, scientists and representatives of the public, who review applications from scientists seeking support through government grants for biomedical research on disorders of the brain and nervous system. NINDS Advisory Council members also advise the NIH on research program planning and priorities.

“In just a few years, Mr. Gross has done a remarkable job of engaging engineers, scientists and clinicians in plans to develop research that will lead to better treatment for people with hydrocephalus,” said Story Landis, Ph.D., Director of the NIH National Institute of Neurological Disorders and Stroke (NINDS). “I am delighted that he will be a member of the NINDS Advisory Council and look forward to his participation.”

I am delighted as well and offer sincere congratulations to Paul on this appointment. Paul brings his entrepreneurial perspective, successful business experience, and a deep, passionate commitment to finding answers for people living with hydrocephalus.

Happy 5th Anniversary HCRN!

By John Kestle, Monday, September 12th, 2011

While everyone has been busy working away on HCRN studies and grant writing, HCRN’s 5th birthday quietly slipped by last month. This is a significant milestone that we should all be proud of. Our first meeting in the Neurosurgical office in Salt Lake was a small group, but we had big plans. Although optimistic, I wasn’t sure if we would succeed, so I am delighted that we continue to work together, grow and be productive five years down the road.
There have been many people who have worked hard to make this happen and keep it going. I would like to thank Paul Gross for his support and guidance, John Smith for his planning and writing abilities, the Executive Committee (Jim Drake, Tom Luerssen, Jerry Oakes, Jack Walker) for their counsel and guidance, and the investigators for enthusiastically supporting this endeavor and entrusting a significant portion of their academic growth to this infrastructure. Additionally of course, we wouldn’t be anywhere without our outstanding team of coordinators and our expert colleagues at the Data Coordinating Center. Last but not least, thank you to our donors who have made HCRN possible.
Thank you to everyone for your cooperative approach and hard work.
Happy 5th Birthday!